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well, today’s oncology appointment didn’t happen.  no, no, not by my choice! 

the new office actually called us yesterday afternoon asking to reschedule because someotherdoctor’sofficewhoshallremainnameless did not send the requested files.  apparently we are required to use their super special records request form. 

seems like perhaps they just wanted to get us on the phone so they could hear for themselves that in fact, no, we won’t ever be going back there, and yes, it’s just because we really don’t like them anymore.  um, i mean, “it’s just too far.”

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as much as this ostrich has enjoyed her view of the sand for the past two months, tomorrow i’ll be getting my head back in the game.  i have an appointment with a new oncologist.

i love my original oncologist, but he’s in northern virginia and that’s finally become a point of contention.  my transplant oncologist, however, is the one who sent me looking for the nearest sand pit, and truth be told, a new oncologist.  i really just could not deal with his callousness, nor step foot into that mcghetto hospital one more time, though i imagine anywhere i’d gone for the transplant i would now loathe.

tomorrow, nuggetdaddy and i are heading up to northern virginia to see my original oncologist.

we love him.

okay, i know, i know two posts in one day is unusual for me.  but, here’s the deal.  someone called and spoke to nuggetdaddy, informing him that friday’s biopsy would no longer be done endoscopically.  now they plan to just do an aspiration straight through my chest wall.  no explanation as to why.  he sprung this news on me at 5pm, so of course there was no one, anywhere, available to answer my questions about what in the hell they’re thinking.

um, no.  local oncologist = fired.  no chance in hell will i be showing up to some random doctor with no prior explanation of the procedure, knowledge of who he is and a complete understanding of exactly why it’s being done that way.  stabbing me in the chest with needle is not something i’m quick to agree to.

my oncologist from northern virginia, the one who treated me the first time, called me at home twice tonight.  i’m so upset that i was at my mom’s and missed both calls!  i’ll be calling him back first thing in the morning and begging to see him or his nurse practitioner on friday.

tomorrow, i’ll still go for my ct scan, and i will sit there until they hand me a cd of my scan.  hopefully that’s the last time i’ll be stepping foot in that hospital, regardless of who in my family works there.

 

smooth_2tomorrow, i’m having a ct scan with contrast, which means (lucky me!) i get to chug two nasty bottles of “banana smoothie” readi-cat barium.  barf.

friday, i’m having a biopsy; more specifically, an endoscopic ultrasound-guided fine-needle aspiration of mediastinal adenopathy.  what a treat.

sunday, we’ll celebrate father’s day with my parents and grandparents with a barbecue at our house.  that night my friend arrives from georgia.

monday, i’ll make a quick and early jaunt to the hospital for another pulmonary function test and muga scan.  these are just pre-chemo baselines.  then more friends should arrive.  at least there are some bright spots to this weekend.

right now, i’m waiting for lots of doctors to call me back.  i don’t like the oncologist we met with yesterday.  i’d rather use my oncologist in northern virginia.  i love him and his staff.

i still need to be sent to a national cancer center for evaluation.  yesterday’s oncologist seemed rather ho-hum about that idea and looked at us as if we were asking for a first class trip to china.

thankfully my mother has been here daily, keeping things in line, cleaning, cooking and reminding me when nugget’s ready for a nap.  that would be now, and so am i.

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