You are currently browsing the tag archive for the ‘hospitalization’ tag.

(but not) to do what i want any ol’ time. i’m just unhooked momentarily from tubes, which i have to say, is in fact,  heavenly.  i’m also really tired a can’t feel my way to type.  so here’s the round ‘up you’ve all been eagerly awaiting and hoping against hope for.

november 15,  a sunday, i checked into casa doyle for some amazing fun, food and frivolity.  seriously, i could totally live there as the non-participating sister wife.  dude, everyone needs a housewife and my dearest of friends does not disappoint.  there was coffee ready every morning.  we cooked breakfast, went out to lunches, ordered in for fun and made some spectacular dinners.  mostly i just stood there when the spectacular dinners were emerging.  there were two mammas, two nurslings, and (eventually two) very happy daddies with ex-disney girls for wives. 

monday, november 16th through wednesday, november 18th my amazing friend drove me to the pathology lab that does stem cell harvesting.  thursday, november 19th i was admitted here to the bmt (bone marrow transplant) unit.  all bmt units are generally still referred to as such since autologous and donor stem cell transplants are relatively new.  well, new enough not rename the units yet.my havest days were uneventful.  so was my check-in day.then day -5 (11/20) i started high-dose ICE chemo.  that lasted through the weekend and finished up on the early pat of day-2 (11/24).  the days -2 and -1 were mostly fluids and resting, and let me tell you, plenty of barfing.  nasty!

i got my stem cells back on wednesday, november 25, day 0.

we’re at day +3, and it’s saturday, november 28th.  i spiked a high fever last night, as was expected at some point.  i got all of my lines, blood and urine cultures right away.  then i woke up after a few hours of iv antibiotics and needed some benadryl to combat the red man syndrome i was suffering.

so there it is, my life in a nutshell so far.  i’m sure i missed plenty and didn’t talk any about the hospital drama with nugget visiting, but they’ve already beaten me back to a half slumber with the benadryl and reconnected me while i typed.

more to come, i promise!

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tonight, i’m going out with the ladies from our neighborhood for what they’ve aptly named “ladies’ night.”  i’ve been terribly depressed for a good while now, so hopefully this will provide me with a much needed, albeit short, mental respite.

it’s hard to blog when i’m depressed.  you can gauge my state of mind for yourself just by the frequency of my posts.

monday, i go back to inova loudoun for the week for my last dose of eshap chemo before my transplant.  no, cancer doesn’t get labor day off.

nugget and nuggetdaddy just left from their second visit today.  poor nugget is starting to get sad when she has to leave now.  ugh!   it just breaks my heart.  we try to focus her attention on going to see her friends and getting to eat a piece of candy once she gets in her carseat.  but, we can clearly see that she’s missing her mama a lot now.

my dear friend barbara visited me today.  she brought disney couture bracelets for nugget and me.  so sweet and just gorgeous (just like her)!

the steroids are really starting to get to me.  i have lots of nervous energy and have a hard time sitting still, despite the fact that i don’t exactly have loads of energy.  i had an ativan nap this afternoon and plan to have another one tonight with phenergan.

the nausea has really kicked in and my appetite is pretty much gone.  that’s okay though.  all i have to do is drink fluids.  i won’t be starving to death anytime soon.

okay, dear readers, that’s the best i can slap together for you right now.  have a good night!

don’t you understand, tink? you mean more to me than anything in this whole world!

-peter pan (1953)

hugs for mama

halloween treats from mama

tinker bell is here!

where's my wand?

here it is!

sparkle power!

off to neverland!

time for candy, mama!

on the train at the mall

more candy, dada!

preening pixie

counting my loot

ready to go home

 

most of the day is a fuzzy blur, but i was able to come home monday afternoon.

tuesday, i vote.  wednesday, i go to the oncologist.  friday, i hopefully start chemo again, sans the bleomycin. 

i’ll be on prednisone for a while to combat the bleo toxicity damage.

 

my fever is gone.  i can almost take a full, pain-free, deep breath.  i might get to go home tomorrow.  it will depend upon my chest x-ray, a conversation between my oncologist and pulmonologist about the true necessity of a lung biopsy and the availability of take-home oxygen tanks on sundays.  happy thoughts!  good night.

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