You are currently browsing the tag archive for the ‘hodgkin’s lymphoma’ tag.

here’s a super exciting behind-the-scenes look at me getting a dose of the radiopharmaceutical fluorodeoxyglucose, more commonly known as FDG or 18F, prior to my PET scan today.

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today is my first scan on the every-six-months track.  it takes a few days for the report to trickle down to me, but i will post the results here.

fingers crossed.

just spoke with my oncology nurse. my oncologist says he sees no change in this week’s scan from the last.

photo by candice eley
photo by candice eley

read the full post at my sister’s blog, if i had a photograph

today marks the passing of one year since my stem cell transplant.

last year i spent thanksgiving in the hospital fighting for my life.  this year i celebrated at home with my family.

happy thanksgiving to you and yours.  let’s do this again next year.

mary jessica hammes has been working on my story for babygooroo.com.

it’s finally up.  go over and have a read, even if you think you already know it by heart.

click here to read pumping through chemotherapy at babygooroo.com

the cleanest i’ve been.  an end to the tears and the in-between years and the troubles i’ve seen?

well, at least for now.

this afternoon i had an appointment with my oncologist to go over my latest pet/ct scan results.  no uptake was noted except for in the thymus, which is expected post-transplant.

i’ll go back for a check-up in three months and if all is well then, i’ll have a ct scan three months after that.

well, today’s oncology appointment didn’t happen.  no, no, not by my choice! 

the new office actually called us yesterday afternoon asking to reschedule because someotherdoctor’sofficewhoshallremainnameless did not send the requested files.  apparently we are required to use their super special records request form. 

seems like perhaps they just wanted to get us on the phone so they could hear for themselves that in fact, no, we won’t ever be going back there, and yes, it’s just because we really don’t like them anymore.  um, i mean, “it’s just too far.”

as much as this ostrich has enjoyed her view of the sand for the past two months, tomorrow i’ll be getting my head back in the game.  i have an appointment with a new oncologist.

i love my original oncologist, but he’s in northern virginia and that’s finally become a point of contention.  my transplant oncologist, however, is the one who sent me looking for the nearest sand pit, and truth be told, a new oncologist.  i really just could not deal with his callousness, nor step foot into that mcghetto hospital one more time, though i imagine anywhere i’d gone for the transplant i would now loathe.

town square, magic kingdom, walt disney world, february 2010

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