You are currently browsing the tag archive for the ‘abvd’ tag.

 

here’s the big news:  as long as my next pet scan is clean (like the last one was) then i’m done.  no more chemo, no radiation.  done.

what this means for us right now is nugget can nurse again.  amen!

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tomorrow is the day of my, as my friends and i like say, “come to jesus” meeting with my oncologist. nugget and i will be making the trek up to nova and then are spending the night with friends.

i have no idea what the outcome will be from this appointment. maybe i’m done with chemo. maybe not. maybe i’m getting radiation. maybe not. i guess we’ll all find out tomorrow. i’ll be sure to post a quick update from my crackberry once tomorrow evening.

wish me luck. pray for me. chant. do it all, i need whatever i help can get.

 

okay, actually eight isn’t enough as i’ve got four more chemo doses to go, but lord in heaven i am soooo over this shit.

i’m fat – newsflash – some people actually gain weight during chemo. thanks for that warning. someone please mail me a mumu because that’s all i’m going to fit in at the end of this.

i’m tired of this nasty taste in my mouth. i mostly drink carbonated beverages now because the bubbles help mask any strange flavors.

i’m exhausted and i can never get a good night’s sleep anymore.  last night nugget slept with her grandmamie though, so i slept with prince lunesta.

my face and neck are now turning a lovely shade of red for the first few days post chemo.  what makes the red man red?  i guess it’s chemo.

the neuropathy is causing me to drop things.  most unappreciated was the bowl of chicken tortilla soup in tiny apartment’s dining room/library/office which is oh so pleasantly carpeted in beige.

 

here’s yesterday’s chemo self-portrait.  i think i like this one best because you can’t see my hair.  when i look at it i just see me. 

you can check out the real world page for the hair update.  i shave it every week or so because while it is still growing, only about half of it is.  so, no, i don’t want to let that half start growing out into a lovely head of string hair.

chemo dose 8

 

here are the latest new house photos.  the fireplace mantle and hearth are in, and the hardwood flooring was going in on my last visit.

living room fireplace

sunroom wood floor installation

 

these two photos are a follow-up to my last post about the shake.  i got a lost of questions about that!

siding

shake

 

tomorrow, nugget and i are off to orlando to visit family and make her first trip to walt disney world.  i am beyond excited.  she just understands that she’ll get to see minnie’s, er, “mimmie’s” house, and girl loves her some mimmie!  mimmie loves you too, nugget!

wdw 25th anniversay train station photo shoot

 

at thursday’s chemo i got the results of last week’s ct and pet scans.  both scans were clear!  this is excellent news.  it means that i will finish out my six cycles of abvd, get scanned again, and as long as everything is still clear i will not have to do any radiation.

nugget had her arm x-rayed thursday before i went to chemo and her degree of fracture has gone from three to thirteen.  while still within the acceptable range for her age, we’re hoping to see some improvement at next week’s x-ray.  if it gets over fifteen degrees then they’ll have to remove her cast and set it.  my poor baby girl!

this week, nugget’s grandma nettie is here visiting.  they’re having a most excellent time playing together!  this morning we got some super cute photos of nugget that i’ll be sure to post sometime next week.

nugget’s tantie sent me the most delicious homemade chocolate chip cookies this week.  i’ve put nugget daddy under strict orders not to eat them all.

last week nugget’s grandmamie and grandad celebrated their twenty-eighth wedding anniversary.  wow!  grandad’s birthday was also celebrated and next week is nugget daddy’s birthday and my birthday.  squee!  we’re really busy with the gifting in august.  i’m hoping to take nugget daddy to dinner and a movie, the x-files: i want to believe.  i asked for a party.  we’ll see what actually happens.

 

 

 

my dear, sweet friend, krista, is getting married today in california.  it breaks my heart that i’m not able to be there to share her special day.  i can’t wait to see all the pictures and hear all about her and jeff’s fabulous honeymoon in greece.  i wish them both a lifetime of happiness together!

jeff & krista

 

these are the socks i chose to wear to my fourth dose of abvd chemo.

frog(s) on my toe(s)

 

self-portrait at chemo

self-portrait at chemo

 

i’m feeling too shitty to give you much more of a wrap up of chemo dose number four (the second dose for cycle two).  i’m tired and nauseated.  time to crawl back to the couch.

“make you strong, little girl
you paint them toes the reddish color
and you know one day
you’re gonna be bigger than a flea
you’re gonna be bigger than that old poison ivy tree

today is day 1 of chemo cycle 2.  i had my third dose of abvd.  all in all it went fairly well.  martha took me and barbara met us there and took me home.

i had to hang around for an extra hour because my blood pressure and pulse were elevated.  my bp went down but my pulse wouldn’t bulge.  the nurse practioner thinks the decadron, a steroid, was causing it.  i’d had a 20mg dose at chemo to control nausea.  i also take it on day 2 and 3 in tablet form, but only 8mg at a time.

my hair has thinned considerably since linda cut it last week.  i’m expecting to see a lot more come out after this dose.  i’m fairly certain i’ll just have it shave once it gets icky thin.  i like wearing a scarves and hats anyhow.

here are nugget daddy and i at my second abvd chemo session for cycle one.  as soon as i walked in the treament room and started up my usual shtick, nurse dana shrieked out from behind a cutain that that must be me.  then nurse marla and nurse dana fought over who would treat me.  i told them there was plenty of me to go around and they could job share me.  so they did.  i brought my laptop because nurse dana is also from florida and wanted to see pictures from my disney days.  of course those are all in storage, so whatever i had scanned on this machine had to suffice.

i felt worse immediately after this treatment in comparison to the first.  they adjusted my meds that control the side effects so i am not nearly as tired as the last time.  nugget is sleeping with her grandmamie so i can take some lunesta and get uninterrupted sleep.  today, day 16, i feel pretty good.

nurse julie called me this morning to say that yesterday’s cbc came back with a low white blood cell count and that i’d need to come in for a neulasta injection.  no big deal since i live walking distance from the hospital and it’s just a subcutaneous injection to boot.  piece of cake.  i’ll likely be getting it at regular intervals going forward.

i got the call that my big rx sunglasses were finally done, after lots of trial and error, so we headed over to get those after my injection. 

on the way to pick them up i ran my fingers through my hair in lieu of an actual brush and took out more hair than i would have cared to.  ick.  so i promptly donned a scarf once we got home so i wouldn’t be tempted to touch it anymore.  i won’t be hastily lopping it off, though.  i’m going to wait and see just how bad it gets.  rose at motherhood and cancer warned me about that.

here’s an up close and personal peek at my port.  i know some of you are curious.  i know some of you are also now a little queasy.  see how fun this is?

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