You are currently browsing the monthly archive for June 2008.
tuesday, i’m getting my hair cut off. this is what came out last time i washed my hair.
my friend, jocelyne, was over for a playdate with her little man bennett yesterday. jocelyne is a cancer survivor and i couldn’t wait to get her opinion on my hair loss situation. i showed her how easily it comes out now and she said it was probably the right time to get it done.
jocelyne also brought me a bag of chemo fun time treats, which included a hello kitty pez dispenser nugget promptly made her own. and nugget also received the cutest little “my market” fruit and veggie basket. we had a blast and can’t wait for another playdate!
i’m traveling to florida this week for roy’s services and that will give me a chance to focus on something other than my cut-off hair. might as well take advantage of the distraction, right?
the neulasta is causing some discomfort, just like they said it would, mostly in my back and legs. i’ll be asking about that when i call nurse beth today to discuss my travel plans and reschedule my cbc.
all that’s left at our house are a few plants in the garage. the buyers are doing their walk-through today, so i hope that goes well for them. nugget daddy spent a lot of time there yesterday sanding and painting over my spackle jobs. i hope they’re happy to see fresh paint and no nail holes!
nugget daddy has to travel for work today. the good news is he’ll be bringing nugget’s grandmamie back with him. auntie barbara and her boys are going to keep nugget and i entertained today. i’m really looking forward to this playdate!
here are nugget daddy and i at my second abvd chemo session for cycle one. as soon as i walked in the treament room and started up my usual shtick, nurse dana shrieked out from behind a cutain that that must be me. then nurse marla and nurse dana fought over who would treat me. i told them there was plenty of me to go around and they could job share me. so they did. i brought my laptop because nurse dana is also from florida and wanted to see pictures from my disney days. of course those are all in storage, so whatever i had scanned on this machine had to suffice.
i felt worse immediately after this treatment in comparison to the first. they adjusted my meds that control the side effects so i am not nearly as tired as the last time. nugget is sleeping with her grandmamie so i can take some lunesta and get uninterrupted sleep. today, day 16, i feel pretty good.
nurse julie called me this morning to say that yesterday’s cbc came back with a low white blood cell count and that i’d need to come in for a neulasta injection. no big deal since i live walking distance from the hospital and it’s just a subcutaneous injection to boot. piece of cake. i’ll likely be getting it at regular intervals going forward.
i got the call that my big rx sunglasses were finally done, after lots of trial and error, so we headed over to get those after my injection.
on the way to pick them up i ran my fingers through my hair in lieu of an actual brush and took out more hair than i would have cared to. ick. so i promptly donned a scarf once we got home so i wouldn’t be tempted to touch it anymore. i won’t be hastily lopping it off, though. i’m going to wait and see just how bad it gets. rose at motherhood and cancer warned me about that.
here’s an up close and personal peek at my port. i know some of you are curious. i know some of you are also now a little queasy. see how fun this is?
we know roy always knew the way. he’s made his final bus run and we’re all missing him terribly. we love you roy and will forever hear your laughter in our hearts.
for my disney friends, please imagine roy is bus driver bob and the doodlebops are actually leads singing and dancing in all their striped, flashlight wielding glory. much love to you all.
for my other readers, your kids will like this if they don’t already.
one last thing.
a scholarship fund has been created in roy’s memory to benifit students at luther high school south in chicago. luther south is a private christian school roy attended grades seven through twelve and as an alumni supported the school for many years.
roy touched so very many lives and i hope in this small moment he’s touching your heart. please consider giving, even if only a dollar or two.
send donations to:
luther high school south
roy michalides scholarship fund
3130 west 87th street
chicago, illinois 60652
happy birthday to you
happy birthday to you
happy birthday, dear tantie
i peed in my potty for you.
what a girl! miss d was the first to donate her trailing tresses as part of my locks of love hair donation drive.
at the salon with baby sis. look at those lucious locks!
miss d’s pony is braided and ready to mail. look at her sassy new summer ‘do. gorgeous!
i’m so proud of miss d! this isn’t her first donation to locks of love and her baby sis is already asking when she can donate, too!
please let me now if you’re donating your hair. download the hair donation form and include a note on it about my blog’s drive.
i hope you’ll encourage your friends and family to do so as well. let your stylist know and ask them to spread the word.
nugget, her grandmamie and i all returned home this afternoon. we’re going to sign the lease and get the keys for the deluxe apartment in just a bit.
yesterday, i met with the builder and finished the selections for the new house. i’m anxious to see what they’ll look like all together. nugget daddy is anxious to see what they look like period.
tonight is our last night in our house. tomorrow we move. lucky for everyone, i have a nail appointment in the middle of the afternoon so that should keep me busy and less able to drive everyone, including myself, crazy.
candy girl, you’re off for some summer fun and we won’t get to wish you farewelll in person. have a safe trip and lots of fun. nugget will be anxiously awaiting her postcard! we’ll miss you tons!
i’ll get my cbc results today, so check back for a follow up post with that info.
nugget and i are at my parents so i can go make the final selections today for the new house. i’m finally feeling pretty good. the pain killer that i got for my jaw is making a huge difference. more on that too later, when i’m not on dial-up. grrrr.
one last final tidbit before i hang up, i’m going to have my very own locks of love hair drive! i’ve already had my first volunteer donate. she’ll be getting a shiny blog post of her very own as soon as her mommy sends me a photo for it. i am soooo proud of her and can’t wait to show off her new haircut to you all. what a great big thing for a little girl to do. i hope you, your friends and family will join us! if you do, please include a note about my drive in your donation form to locks of love. be sure to check with your salon or stylist when you make your appointment because most of them will do your donation hair cut & style for free!
today i picked up a nasty and costly little bottle of magic mouthwash from the pharmacy. I don’t have any ulcers thankfully, but i am experiencing some mouth pain that i could certainly do without.
here’s a photo of me from last thursday during my first treatment.
here’s a photo of our last nursing session just before i left for treatment.
whatchoo talkin’ ’bout?